Unprecedented insight, resources and community.
Keynote & Panel Discussion
Education Series
Patient Sessions
Expert Session
Networking Session
Partnered Sponsor Session
Different Sessions:
Taking place in May 2026, HPCC26 will provide a unique environment for open dialogue on real-world evidence, integrated care models, equitable access strategies, and the future of patient-partnered research.
Join us at the intersection of lived experience, clinical innovation, and system leadership.
Unprecedented insight, resources and community.
Different Sessions:
Keynote & Panel Discussion
Education Series
Patient Sessions
Expert Session
Networking Session
Partnered Sponsor Session
Taking place in May 2026, HPCC26 will provide a unique environment for open dialogue on real-world evidence, integrated care models, equitable access strategies, and the future of patient-partnered research.
Join us at the intersection of lived experience, clinical innovation, and system leadership.
Unprecedented insight, resources and community.
Different Sessions:
Keynote & Panel Discussion
Education Series
Patient Sessions
Expert Session
Networking Session
Partnered Sponsor Session
Taking place in May 2026, HPCC26 will provide a unique environment for open dialogue on real-world evidence, integrated care models, equitable access strategies, and the future of patient-partnered research.
Join us at the intersection of lived experience, clinical innovation, and system leadership.
11:45 - 17:00
Beyond AI Patient Data Ownership and Ethical Tech
A discussion on how patients can gain control over how their health data is collected, shared, and used in research and digital tools.
11:40 AM
CRISPR CAR-T and the Cure Conversation
A clear-eyed look at where gene and cell therapies stand, what’s hype, what’s hope, and what it really means for patients today.
11:40 AM
Precision Prevention Catching Conditions Before They Start
How predictive genetics and biomarkers are shaping earlier intervention and risk-based care models in haematology.
11:40 AM
Patients as Innovators: How Patient Hacks are Influencing Clinical Tools
Real examples of patient-created solutions that have become formal tools, apps, or even research topics.
11:40 AM
Unpacking Medical Gaslighting (‘not being heard’)
What it is, how to recognise it, and how patients can advocate for themselves when their concerns are dismissed.
11:40 AM
Reclaiming Identity Post-Diagnosis
A storytelling and writing workshop focused on rediscovering your identity beyond the patient role.
11:40 AM
Wearables and Remote Monitoring: Real Patient Reviews
Real-world experiences with health tech: what's helpful, what’s not, and where improvements are needed.
11:40 AM
Doctor Speak to Human Speak: Fixing the Language of Healthcare
Patients and clinicians work together to simplify real-world letters, forms, and medical communications.
Keynote & Research Presentations
The morning session will begin at
9:00 AM. Add more relevant text here.
11:40 AM
Ask Me Anything with a Multidisciplinary Care Team
An open session where patients can pose any question to a panel of haematology clinicians, nurses, and pharmacists
11:40 AM
Patient-Led Clinical Trial Simulation
A role-play experience giving patients insight into how trials are designed, reviewed, and experienced from the inside.
11:40 AM
The Power of the Collective Organising for Change Outside the Clinic
How patient communities have driven legislative, research, and funding shifts—and how to get involved.
11:40 AM
WM Treatment Today and Tomorrow:
Many WM patients are not treated immediately after diagnosis. This session validates the emotional difficulty of that approach and offers practical tools to manage the anxiety and uncertainty that come with it.
11:40 AM
What’s Next in Sickle Cell Treatment: From Cures to
Care Access
A must-attend overview of the latest developments in gene therapy, disease-modifying treatments, and how patients can access them. Covers both cutting-edge science and the real-world barriers to getting care.
11:40 AM
Sickle Cell and the System: How to Be Heard, Seen, and Taken Seriously
A powerful, practical session addressing systemic bias,
emergency room experiences, and how to advocate for yourself or a loved one in medical settings.
11:40 AM
Living with MPNs: Managing Fatigue, Brain Fog,
and Daily Life
Focused on the invisible yet disruptive symptoms that affect
quality of life, providing tools for coping and communicating
needs.
11:40 AM
MPNs on the Move: What’s Changing in Diagnosis,
Risk, and Treatment
An update on the evolving treatment landscape for MPNs, including interferons, JAK inhibitors, and newer combination therapies, plus how risk levels are assessed and updated over time.
Advanced Care Planning and the Conversations We Avoid
Creating a safe space to talk about fears, end-of-life planning, and palliative options early and honestly.
11:40 AM
What Every Myeloma Patient Should Know About
Treatment Today
A comprehensive overview of current treatment strategies,
including triplet/quad therapies, maintenance plans, and
the evolving role of CAR-T and bispecific antibodies.
11:40 AM
Living Long Term with Myeloma: Managing Side Effects, Stress, and Surveillance
Focused on navigating life during and after treatment covering
fatigue, bone health, neuropathy, scanxiety, and staying mentally well in a chronic disease landscape.
11:40 AM
CML in 2026: Stopping Treatment, Switching TKIs, and What’s Next
An essential session on treatment-free remission, side effect management, and choosing the right TKI based on mutation profiles and lifestyle factors.
11:40 AM
Living Well with CML: From Daily Pills to Daily Life
Practical advice on balancing treatment with work, relationships, and long-term health monitoring, plus how to handle the emotional weight of a chronic cancer.
11:40 AM
Women and Blood Cancer: Hormones, Fertility, and the Gaps in Care
A frank and informative session exploring how diagnosis and treatment intersect with menstruation, menopause, fertility, pregnancy, and gender bias in symptom recognition & care delivery.
Advanced Care Planning and the Conversations We Avoid
Creating a safe space to talk about fears, end-of-life planning, and palliative options early and honestly.
08:30
Breakfast & Registration
09:15
Welcome to HPCC26
09:30
Keynote Sessions
Opening
08:30 - 11:45
11:45 - 17:00
Beyond AI: Patient Data Ownership and Ethical Tech
A discussion on how patients can gain control over how their health data is collected, shared, and used in research and digital tools.
11:40 AM
CRISPR, CAR-T and the Cure Conversation
A clear-eyed look at where gene and cell therapies stand, what’s hype, what’s hope, and what it really means for patients today.
11:40 AM
Precision Prevention: Catching Conditions Before They Start
How predictive genetics and biomarkers are shaping earlier intervention and risk-based care models in haematology.
11:40 AM
Patients as Innovators: How Patient Hacks are Influencing Clinical Tools
Real examples of patient-created solutions that have become formal tools, apps, or even research topics.
11:40 AM
Unpacking Medical Gaslighting
What it is, how to recognise it, and how patients can advocate for themselves when their concerns are dismissed.
11:40 AM
Reclaiming Identity Post-Diagnosis
A storytelling and writing workshop focused on rediscovering your identity beyond the patient role.
11:40 AM
Wearables and Remote Monitoring: Real Patient Reviews
Real-world experiences with health tech: what's helpful, what’s not, and where improvements are needed.
11:40 AM
Doctor Speak to Human Speak: Fixing the Language of Healthcare
Patients and clinicians work together to simplify real-world letters, forms, and medical communications.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
11:40 AM
Ask Me Anything with a Multidisciplinary Care Team
An open session where patients can pose any question to a panel of haematology clinicians, nurses, and pharmacists.
11:40 AM
Patient-Led Clinical Trial Simulation
A role-play experience giving patients insight into how trials are designed, reviewed, and experienced from the inside.
11:40 AM
The Power of the Collective Organising for Change Outside the Clinic
How patient communities have driven legislative, research, and funding shifts and how to get involved.
11:40 AM
WM Treatment Today and Tomorrow
Many WM patients are not treated immediately after diagnosis. This session validates the emotional difficulty of that approach and offers practical tools to manage the anxiety and uncertainty that come with it.
11:40 AM
What’s Next in Sickle Cell Treatment: From Cures to
Care Access
A must-attend overview of the latest developments in gene therapy, disease-modifying treatments, and how patients can access them. Covers both cutting-edge science and the real-world barriers to getting care.
11:40 AM
Sickle Cell and the System: How to Be Heard, Seen, and Taken Seriously
A powerful, practical session addressing systemic bias,
emergency room experiences, and how to advocate for yourself or a loved one in medical settings.
11:40 AM
Living with MPNs: Managing Fatigue, Brain Fog,
and Daily Life
Focused on the invisible yet disruptive symptoms that affect
quality of life, providing tools for coping and communicating
needs.
11:40 AM
MPNs on the Move: What’s Changing in Diagnosis,
Risk, and Treatment
An update on the evolving treatment landscape for MPNs, including interferons, JAK inhibitors, and newer combination therapies, plus how risk levels are assessed and updated over time.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
11:40 AM
What Every Myeloma Patient Should Know About
Treatment Today
A comprehensive overview of current treatment strategies,
including triplet/quad therapies, maintenance plans, and
the evolving role of CAR-T and bispecific antibodies.
11:40 AM
Living Long Term with Myeloma: Managing Side Effects, Stress, and Surveillance
Focused on navigating life during and after treatment covering
fatigue, bone health, neuropathy, scanxiety, and staying mentally well in a chronic disease landscape.
11:40 AM
CML in 2026: Stopping Treatment, Switching TKIs, and What’s Next
An essential session on treatment-free remission, side effect management, and choosing the right TKI based on mutation profiles and lifestyle factors.
11:40 AM
Living Well with CML: From Daily Pills to Daily Life
Practical advice on balancing treatment with work, relationships, and long-term health monitoring, plus how to handle the emotional weight of a chronic cancer.
11:40 AM
Women and Blood Cancer: Hormones, Fertility, and the Gaps in Care
A frank and informative session exploring how diagnosis and treatment intersect with menstruation, menopause, fertility, pregnancy, and gender bias in symptom recognition and care delivery.
Sessions, Breakout Rooms and Fireside Charts
.jpg)
11:45 - 17:00
17:15
Closing Keynote and Remarks
17:15
Goodie Bags and Ice cream
Closing
17:15
Interactive Exhibition Hall
12:10 - 17:00
12:10 - 17:00
Interactive Exhibition Hall Open All Day
Location: QEll Centre, Westminster, explore innovation stands, research displays, and partner booths
Above is provisional and may be subject to change. Final schedule to be confirmed.
*This meeting has been organised by Sanius Health and funding has been through a number of pharmaceutical and healthcare technology companies. These companies have had no involvement in the organisation or content of this meeting.
11:40 AM
Ask Me Anything with a Multidisciplinary Care Team
An open session where patients can pose any question to a panel of haematology clinicians, nurses, and pharmacists.
11:40 AM
Patient-Led Clinical Trial Simulation
A role-play experience giving patients insight into how trials are designed, reviewed, and experienced from the inside.
11:40 AM
The Power of the Collective Organising for Change Outside the Clinic
How patient communities have driven legislative, research, and funding shifts and how to get involved.
11:40 AM
WM Treatment Today and Tomorrow
Many WM patients are not treated immediately after diagnosis. This session validates the emotional difficulty of that approach and offers practical tools to manage the anxiety and uncertainty that come with it.
11:40 AM
What’s Next in Sickle Cell
Treatment: From Cures to Care Access
A must-attend overview of the latest developments in gene therapy, disease-modifying treatments, and how patients can access them. Covers both cutting-edge science and the real-world barriers to getting care.
11:40 AM
Sickle Cell and the System: How to Be Heard, Seen, and Taken Seriously
A powerful, practical session addressing systemic bias, emergency room experiences, and how to advocate for yourself or a loved one in medical settings.
11:40 AM
Living with MPNs: Managing Fatigue, Brain Fog, and Daily Life
A comprehensive overview of current treatment strategies, including triplet/quad therapies, maintenance plans, and the evolving role of CAR-T and bispecific antibodies.
11:40 AM
MPNs on the Move: What’s Changing in Diagnosis, Risk, and Treatment
An update on the evolving treatment landscape for MPNs, including interferons, JAK inhibitors, and newer combination therapies, plus how risk levels are assessed and updated over time.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
Above is provisional and may be subject to change. Final schedule to be confirmed.
Closing Remarks
17:15
17:15
Closing Keynote and Remarks
17:15
Goodie Bags and Ice cream
12:10 - 17:00
Interactive Exhibition Hall Open All Day
Location: QEll Centre, Westminster, explore innovation stands, research displays, and partner booths
Opening
08:30-11:45
08:30
Breakfast & Registration
09:30
Keynote Sessions
09:15
Welcome to HPCC26
Sessions, Breakout Rooms and Fireside Charts
.jpg)
11:45 -17:00
11:45 - 17:00
Beyond AI: Patient Data Ownership and Ethical Tech
A discussion on how patients can gain control over how their health data is collected, shared, and used in research and digital tools.
11:40 AM
CRISPR, CAR-T and the Cure Conversation
A clear-eyed look at where gene and cell therapies stand, what’s hype, what’s hope, and what it really means for patients today.
11:40 AM
Precision Prevention: Catching Conditions Before They Start
How predictive genetics and biomarkers are shaping earlier intervention and risk-based care models in haematology.
11:40 AM
Patients as Innovators: How Patient Hacks are Influencing Clinical Tools
Real examples of patient-created solutions that have become formal tools, apps, or even research topics.
11:40 AM
Unpacking Medical Gaslighting (‘not being heard’)
What it is, how to recognise it, and how patients can advocate for themselves when their concerns are dismissed.
11:40 AM
Reclaiming Identity Post-Diagnosis
A storytelling and writing workshop focused on rediscovering your identity beyond the patient role.
11:40 AM
Wearables and Remote Monitoring: Real Patient Reviews
Real-world experiences with health tech: what's helpful, what’s not, and where improvements are needed.
11:40 AM
Doctor Speak to Human Speak: Fixing the Language of Healthcare
Patients and clinicians work together to simplify real-world letters, forms, and medical communications.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
11:40 AM
What Every Myeloma Patient Should Know About Treatment Today
A comprehensive overview of current treatment strategies, including triplet/quad therapies, maintenance plans, and the evolving role of CAR-T and bispecific antibodies.
11:40 AM
Living Long Term with Myeloma: Managing Side Effects, Stress, and Surveillance
Focused on navigating life during and after treatment covering fatigue, bone health, neuropathy, scanxiety, and staying mentally well in a chronic disease landscape.
11:40 AM
CML in 2026: Stopping Treatment, Switching TKIs, and What’s Next
An essential session on treatment-free remission, side effect management, and choosing the right TKI based on mutation profiles and lifestyle factors.
11:40 AM
Living Well with CML: From Daily Pills to Daily Life
Practical advice on balancing treatment with work, relationships, and long-term health monitoring, plus how to handle the emotional weight of a chronic cancer.
11:40 AM
Women and Blood Cancer: Hormones, Fertility, and the Gaps in Care
A frank and informative session exploring how diagnosis and treatment intersect with menstruation, menopause, fertility, pregnancy, and gender bias in symptom recognition and care delivery.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
11:40 AM
Ask Me Anything with a Multidisciplinary Care Team
An open session where patients can pose any question to a panel of haematology clinicians, nurses, and pharmacists.
11:40 AM
Patient-Led Clinical Trial Simulation
A role-play experience giving patients insight into how trials are designed, reviewed, and experienced from the inside.
11:40 AM
The Power of the Collective Organising for Change Outside the Clinic
How patient communities have driven legislative, research, and funding shifts and how to get involved.
11:40 AM
WM Treatment Today and Tomorrow:
Many WM patients are not treated immediately after diagnosis. This session validates the emotional difficulty of that approach and offers practical tools to manage the anxiety and uncertainty that come with it.
11:40 AM
What’s Next in Sickle Cell Treatment: From Cures to
Care Access
A must-attend overview of the latest developments in gene therapy, disease-modifying treatments, and how patients can access them. Covers both cutting-edge science and the real-world barriers to getting care.
11:40 AM
Sickle Cell and the System: How to Be Heard, Seen, and Taken Seriously
A powerful, practical session addressing systemic bias,
emergency room experiences, and how to advocate for yourself or a loved one in medical settings.
11:40 AM
Living with MPNs: Managing Fatigue, Brain Fog,
and Daily Life
Focused on the invisible yet disruptive symptoms that affect
quality of life, providing tools for coping and communicating
needs.
11:40 AM
MPNs on the Move: What’s Changing in Diagnosis,
Risk, and Treatment
An update on the evolving treatment landscape for MPNs, including interferons, JAK inhibitors, and newer combination therapies, plus how risk levels are assessed and updated over time.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
Above is provisional and may be subject to change. Final schedule to be confirmed.
Closing Remarks
17:15
17:15
Closing Keynote and Remarks
17:15
Goodie Bags and Ice cream
12:10 - 17:00
Interactive Exhibition Hall Open All Day
Location: QEll Centre, Westminster:, explore innovation stands, research displays, and partner booths
Sessions, Breakout Rooms and Fireside Charts
11:45 -17:00
11:45 - 17:00
Beyond AI: Patient Data Ownership and Ethical Tech
A discussion on how patients can gain control over how their health data is collected, shared, and used in research and digital tools.
11:40 AM
CRISPR, CAR-T and the Cure Conversation
A clear-eyed look at where gene and cell therapies stand, what’s hype, what’s hope, and what it really means for patients today.
11:40 AM
Precision Prevention: Catching Conditions Before They Start
How predictive genetics and biomarkers are shaping earlier intervention and risk-based care models in haematology.
11:40 AM
Patients as Innovators: How Patient Hacks are Influencing Clinical Tools
Real examples of patient-created solutions that have become formal tools, apps, or even research topics.
11:40 AM
Unpacking Medical Gaslighting (‘not being heard’)
What it is, how to recognise it, and how patients can advocate for themselves when their concerns are dismissed.
11:40 AM
Reclaiming Identity Post-Diagnosis
A storytelling and writing workshop focused on rediscovering your identity beyond the patient role.
11:40 AM
Wearables and Remote Monitoring: Real Patient Reviews
Real-world experiences with health tech: what's helpful, what’s not, and where improvements are needed.
11:40 AM
Doctor Speak to Human Speak: Fixing the Language of Healthcare
Patients and clinicians work together to simplify real-world letters, forms, and medical communications.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
11:40 AM
What Every Myeloma Patient Should Know About
Treatment Today
A comprehensive overview of current treatment strategies,
including triplet/quad therapies, maintenance plans, and
the evolving role of CAR-T and bispecific antibodies.
11:40 AM
Living Long Term with Myeloma: Managing Side Effects, Stress, and Surveillance
Focused on navigating life during and after treatment covering
fatigue, bone health, neuropathy, scanxiety, and staying mentally well in a chronic disease landscape.
11:40 AM
CML in 2026: Stopping Treatment, Switching TKIs, and What’s Next
An essential session on treatment-free remission, side effect management, and choosing the right TKI based on mutation profiles and lifestyle factors.
11:40 AM
Living Well with CML: From Daily Pills to Daily Life
Practical advice on balancing treatment with work, relationships, and long-term health monitoring, plus how to handle the emotional weight of a chronic cancer.
11:40 AM
Women and Blood Cancer: Hormones, Fertility, and the Gaps in Care
A frank and informative session exploring how diagnosis and treatment intersect with menstruation, menopause, fertility, pregnancy, and gender bias in symptom recognition & care delivery.
Sessions, Breakout Rooms and Fireside Charts
11:45 - 17:00
Opening
08:30-11:45
08:30
Breakfast & Registration
09:30
Keynote Sessions
09:15